Pegah Rahbarinejad; Fatemeh Sadat Hashemi Javaheri; Mostafa Shahraki Jazinaki; Hamid Reza Kianifar; Saeedeh Talebi
Abstract
Introduction: Epidermolysis bullosa (EB) represents a diverse set of disorders that affect the skin and mucous membranes. Ensuring proper nutrition for children and adolescents with Epidermolysis Bullosa is a vital aspect of their treatment plan. The objective of this study is to demonstrate how nutritional ...
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Introduction: Epidermolysis bullosa (EB) represents a diverse set of disorders that affect the skin and mucous membranes. Ensuring proper nutrition for children and adolescents with Epidermolysis Bullosa is a vital aspect of their treatment plan. The objective of this study is to demonstrate how nutritional intervention in a specialized nutrition clinic can enhance their well-being.Methods and material: This longitudinal study was conducted over a 3-year period at Akbar Children Hospital, a tertiary facility affiliated with Mashhad University of Medical Sciences in Iran. The study included all patients diagnosed with EB based on clinical symptoms and genetic studies.Results: In the present study, the median (25-75 IQR) age of the participants was 81.0 (36.0-156.0) months, and 19% of the participants were girls. The median (25-75 IQR) weight was 17.5 (10.8-24.5) kg, and the mean ± SD of height was 109.9 ± 31.1 cm. Among all types of malnutrition, there was only a significant association between gastrointestinal complications and BMI-for-age z-score (OR: 0.08, P-value=0.039) in the crude model. After adjustment, there was no significant association between gastrointestinal complications and malnutrition. The mean values of weight at the baseline, the first, and the second appointment of the study were 21.3, 21.2, and 24.8 kg, respectively. Moreover, the mean height at the baseline, the first, and the second appointment of the study were 109.4, 121.0, and 123.4 cm, respectively.Conclusion: Regular clinic visits and tailored nutritional interventions positively impact EB patients, emphasizing the importance of managing anemia and deficiencies for their well-being.
Fatemeh Sadat Hashemi Javaheri; Hamidreza Kianifar; Pegah Rahbarinejad; Saeedeh Talebi
Abstract
Introduction:Autism spectrum disorder (ASD) is a neurodevelopmental disorder characterized by difficulties with social interaction and communication, and by restricted and repetitive behavior. Children with ASD are at risk of nutritional problems that could impact growth and anthropometric indices over ...
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Introduction:Autism spectrum disorder (ASD) is a neurodevelopmental disorder characterized by difficulties with social interaction and communication, and by restricted and repetitive behavior. Children with ASD are at risk of nutritional problems that could impact growth and anthropometric indices over both the short and long term. The aim of present study was to determine prevalence of malnutrition and other factors related to the malnutrition among children and adolescent with autism disorder.Material and method:To assess the prevalence of malnutrition indicators among preschool children with ASD, a cross-sectional study was conducted among 81 children and adolescents who referred to subspecialized and specialized Autism Akbar Children‘s Hospital, Mashhad University of Medical Sciences, Mashhad, Iran. Weight and height measurements were assessed based on standard protocols. The z-score of anthropometric indices was determined for all participants. Participants were asked about nutritional problems by the interview from their parents. Result:In the current study, the mean ± SD of age was 10.1±3.7 years old. Among participants 3.7% were with Diarrhea, 33.3% with Constipation, 4.9% with Reflux, 3.7% with Flatulence, and 1.2% with Steatorrhea. The prevalence of both of food neophobia and food Allergy was 16%. Furthermore, 18.5% had poor appetite, 23.5% had moderate and 58% had good appetite. Based on standardized z-scores, the overall prevalence of under-weight, risk of overweight, overweight, and obese was 1.2%, 22.2%, 12.3%, and 7.4%, respectively. Among participants 4.9% was stunting.Conclusion:Based on aforementioned prevalence, improving nutritional problems and anthropometric indices among ASD children and adolescents are crucial issue.